Privacy Protection, Personalized Medicine, and Genetic Testing
研究了美国各州基因隐私法如何通过通知、反歧视和限制再披露三种方式影响癌症风险基因检测的普及，发现赋予用户再披露控制权能促进检测，而通知要求反而抑制检测。
This paper explores how state genetic privacy laws affect the diffusion of personalized medicine, using data on genetic testing for cancer risks. State genetic privacy regimes employ and combine up to three alternative approaches to protecting patient privacy: Rules requiring that an individual is notified about potential privacy risks; rules restricting discriminatory usage of genetic data by employers or insurance companies; and rules limiting redisclosure without the consent of the individual. We find empirically that approaches to genetic and health privacy that give users control over redisclosure encourage the spread of genetic testing, but that notification deters individuals from obtaining genetic tests. We present some evidence that the latter reflects costs imposed on the supply of genetic testing by hospitals. We find no effects of state genetic antidiscrimination laws on genetic testing rates. The online appendix is available at https://doi.org/10.1287/mnsc.2017.2858 . This paper was accepted by Chris Forman, information systems.