数据治理空间:以国家个人健康数据数字服务为例

Data governance spaces: The case of a national digital service for personal health data

Information and Organization · 2023
被引 33
ABS 3

中文导读

通过回顾挪威国家个人健康数据数字服务十年的演变,研究数据治理如何随时间展开,提出“数据治理空间”概念,区分权威倍增与行为体从属两种动态,对关注多行为体间数据治理的学者有参考价值。

Abstract

This paper investigates data governance empirically by conducting a retrospective study of the ten-year evolution of a national digital service for personal health data in Norway. We show how data governance unfolds over time as data become shared and itinerant across multiple actors. Building on our findings, we introduce the concept of data governance spaces to refer to the authorized relationships among multiple actors, which specify the boundaries of decision-making authority, rights, roles, and responsibilities around data processing. We contribute to the literature on data governance by distinguishing between a) authority multiplication, where data are handed over to other actors to serve diverse purposes triggering horizontal dynamics, and b) actor subordination, where authorities delegate data handling for uniform purposes triggering vertical dynamics. Overall, the paper extends prior research by showing how data governance unfolds beyond intra-, or inter-organizational boundaries and shifts attention to data's pivotal role, and the purposes for which data are collected, shared or used across multiple actors.

数据治理健康数据数字服务信息管理公共管理